Thursday 25 September 2014

Giving a Gift That Lives On



Joni received her 25th Donation pin on Tuesday, September 23, 2014.

My mother at the age of 17 gave birth to a baby girl she named Joni Lee. That's me. When I turned two and a half, the daycare I was attending had an outbreak of chickenpox. I contracted it and became severely ill. I had to be air lifted to the IWK Hospital in Halifax. There I had to get an I.V. implanted in my left arm because I was taking so many seizures and had to get blood transfusions in order to have a chance to survive. When I came out of the coma after three months, the medical team soon discovered that I couldn't feel the right side of my body, partial paralysis due to brain injury.  However, the chickenpox was no match for the folks that had my back! The medical team at the IWK worked with my parents and they got me walking and talking and participating in life again!

At my High School they have Blood Drives and as soon as I was allowed, at the age of seventeen, I signed up. People at that time asked me why I wanted to do it and I told them it was simple... to give back for what I got when I was two and a half. Still to this day I continue to give blood. It's a good feeling I get knowing what I give is going to save lives.

I want everyone to give blood if they are able. Here are some good tips that have helped me.
  • Remember to take your Blood Donor card or if it's your first time, take your ID or Drivers License.
  • Drink a lot of water (makes your blood flow faster so you get it over with quicker).
  • Eat raisins or blueberries to keep up your iron (you need a high iron to give blood).
  • Eat before you give blood so you don't faint.
I like their saying, “Blood: it's in you to give.” It is. So please do.




Joni Miner    

In Response



In response to the article regarding Paige Cunliffe's story, I would like to share my experience living in a long-term care facillity.

When I was only 33 years old, due to personal circumstances I found myself in need of a place to live. I called my Father and being the great Dad he is, he said he would go and look at places for me and about a month later he told me he had found a place and we went together to have a look.

It was a long-term care facility in my home town. I was not thrilled about having to live there with elderly people but with being on a fixed income at the time, there really were no other options for me. It was hard for a few reasons. The ambulance would come often and it didn't take long to figure out why. The facility's house rules were pretty strict; if I was not home for supper I would not get supper, (they would throw it out). The facility had a curfew and I missed it once and I found myself locked out. I also wanted to take some daytime programming but long-term housing is very expensive and it was absorbing most of my disability support funds.

A new staff person got hired at this facility and we hit it off. She is a good listener and I felt safe sharing my concerns and frustrations with her. I was relieved one day when she told me she was going to buy a house and that she would take me in as a border. True to her word, she did. That was on May 2nd ,2002 and 12 years later I am still living with her and her family.  I have a high level of independence, have goals I am working toward, and feel more in charge of my own life.

I know the frustrations that happen when you are forced to live a life-style that is not your truth. I hope the government of Canada is listening to Paige and her supporters and to the rest of us who have had to live in long-term institutions before our time.

In closing, I would like to say, that the path I took towards more independence might not work for everyone but if it helps even one person, it will have been worth the time it took to share this story.


Joey Blacquiere

See Paige's Story by clicking on the link below: